中华皮肤科杂志 ›› 2026, Vol. 59 ›› Issue (7): 632-636.doi: 10.35541/cjd.20260131

• 规范解读·光皮肤病学 • 上一篇    下一篇

[开放获取]    规范化、精准化与全周期管理:《白癜风患者家庭光疗管理规范》解读

胡煜1    鲁严2    陈崑1    顾恒1   

  1. 1中国医学科学院 北京协和医学院皮肤病医院,南京  210042;2南京医科大学第一附属医院,南京  210029
  • 收稿日期:2026-03-13 修回日期:2026-04-13 发布日期:2026-07-03
  • 通讯作者: 鲁严;陈崑 E-mail:luyan6289@163.com; kunchen181@aliyun.com

Standardization, precision, and full-cycle management: interpretation of Specifications for the Management of Vitiligo Patients Undergoing Home Phototherapy

Hu Yu1, Lu Yan2, Chen Kun1, Gu Heng1   

  1. 1Hospital for Skin Diseases, Institute of Dermatology, Chinese Academy of Medical Sciences & Peking Union Medical College, Nanjing 210042, China; 2The First Affiliated Hospital with Nanjing Medical University, Nanjing 210029, China
  • Received:2026-03-13 Revised:2026-04-13 Published:2026-07-03
  • Contact: Lu Yan; Chen Kun E-mail:luyan6289@163.com; kunchen181@aliyun.com

摘要: 【摘要】 白癜风病程迁延、复色缓慢,紫外线光疗作为一线治疗被国内外指南广泛推荐。医院光疗因就诊频次高,患者依从性受限,家庭光疗的需求日益增多。本文对《白癜风患者家庭光疗管理规范》进行解读。该规范由多学科专家共同制订,与现行国家行业标准及团体标准形成有效衔接,以“医生主导、患者主体”为核心理念,构建了涵盖评估筛选、剂量管理、疗效监测及随访的全周期管理体系。该规范内容涵盖基于疾病分期的适应证与禁忌证界定、依据皮损部位与波长差异的个体化起始剂量方案及基于红斑反应的动态调整策略、特殊人群与敏感部位的差异化管理、平台期识别与间歇治疗方案、联合用药原则与复色后逐渐减量的维持治疗策略,填补了国内白癜风家庭光疗标准的空白,为其规范化实施提供依据。

关键词: 白癜风, 紫外线, 光疗法, 规范, 家庭光疗, 窄谱中波紫外线

Abstract: 【Abstract】 Vitiligo is a chronic skin disease with a prolonged course and slow repigmentation, and ultraviolet phototherapy is widely recommended as a first-line treatment in Chinese and international guidelines. However, hospital-based phototherapy is limited by frequent visits and poor adherence, highlighting the growing need for home phototherapy. This article interprets the Specifications for the Management of Vitiligo Patients Undergoing Home Phototherapy. Developed by a multidisciplinary expert panel and effectively aligned with current national industry standards and group standards, the specifications adopt a physician-led, patient-centered core principle and establish a full-cycle management framework encompassing assessment and screening, dose management, efficacy monitoring, and follow-up. Its key contents include definitions of indications and contraindications based on disease staging, individualized starting dose protocols determined according to lesion sites and wavelengths with erythema reaction-guided dynamic adjustment strategies, differentiated management for special populations and sensitive anatomical sites, plateau identification and intermittent therapy regimens, combination therapy principles, and gradual tapering maintenance strategies following repigmentation. The specifications fill a gap in Chinese standards for home phototherapy in vitiligo, and provide a basis for its standardized implementation.

Key words: Vitiligo, Ultraviolet rays, Phototherapy, Benchmarking, Home phototherapy, Narrowband ultraviolet B

引用本文

胡煜 鲁严 陈崑 顾恒. [开放获取]    规范化、精准化与全周期管理:《白癜风患者家庭光疗管理规范》解读[J]. 中华皮肤科杂志, 2026,59(7):632-636. doi:10.35541/cjd.20260131

Hu Yu, Lu Yan, Chen Kun, Gu Heng. Standardization, precision, and full-cycle management: interpretation of Specifications for the Management of Vitiligo Patients Undergoing Home Phototherapy[J]. Chinese Journal of Dermatology, 2026, 59(7): 632-636.doi:10.35541/cjd.20260131