Chinese Journal of Dermatology ›› 2025, Vol. 58 ›› Issue (7): 608-612.doi: 10.35541/cjd.20240277

• Original Articles • Previous Articles     Next Articles

Home-based phototherapy implementation and management needs in patients with vitiligo: a questionnaire survey analysis

Li Yu1, Wang Ziwei2, Ye Rongjia1, Li Rong3, Zhu Yan1, Zhang Xiaohua1, Huang Dan1, Ju Mei1   

  1. 1Hospital for Skin Diseases, Institute of Dermatology, Chinese Academy of Medical Sciences & Peking Union Medical College, Nanjing 210042, China; 2Department of Dermatology, Xuzhou Central Hospital, Xuzhou 221000, Jiangsu, China; 3Department of Dermatology, Fujian Medical University Union Hospital, Fuzhou 350001, China
    Li Yu and Wang Ziwei contributed equally to this article
  • Received:2024-05-21 Revised:2025-05-13 Online:2025-07-15 Published:2025-07-03
  • Contact: Li Yu E-mail:lyliyu1119@163.com
  • Supported by:
    Research Projects of Chinese Research Hospital Association(Y2021FH-PFK06)

Abstract: 【Abstract】 Objective To investigate the current status of the implementation of home-based phototherapy (HBPT) in patients with vitiligo, and to analyze management needs among patients receiving HBPT. Methods A questionnaire survey was conducted on the application of HBPT among patients with vitiligo who visited the outpatient clinic of the Hospital for Skin Diseases, Chinese Academy of Medical Sciences from December 2021 to November 2022. Additionally, the popularization and usage of HBPT as well as needs of patient management were investigated and analyzed in these vitiligo patients. Results A total of 496 valid questionnaires were collected from 496 patients with vitiligo (241 males [48.5%] and 255 females [51.5%]). Their ages at visit ranged from 2 to 67 (30.87 ± 12.36) years. The most commonly affected sites were the head and face (52.2%), followed by hair (32.1%), hands and feet (31.4%), trunk (30.2%), limbs (24.3%), neck (19.5%), and perineum (9.9%). Among the participants, 320 (64.5%) were currently using or had used HBPT, and 352 (70.8%) expressed a willingness to learn more about HBPT usage guidelines and health education. Regarding the repigmentation outcomes after HBPT: among 312 patients, 54 (17.3%) reported complete recovery, 64 (20.5%) were markedly improved, 142 (45.5%) experienced improvement, and 52 (16.7%) showed no response. Adverse reactions occurred in 223 patients (71.5%), of whom 28 (9.0%) experienced severe adverse reactions. The most desired guiding information was the adjustment method for phototherapy dosage and treatment duration (184/352, 52.3%); the most effective way to receive health education information was through verbal education by medical staff (177/352, 50.3%). Conclusion For vitiligo patients who were willing to accept and use HBPT, the most desired guiding information was the adjustment method for phototherapy dosage and treatment duration, and verbal health education by medical staff appeared to be the main way to obtain health education information.

Key words: Vitiligo, Phototherapy, Disease management, Home-based phototherapy, Surveys and questionnaires