中华皮肤科杂志 ›› 2023, e20230123.doi: 10.35541/cjd.20230123

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[开放获取]   天疱疮患者健康教育共识(2023版)

中国医师协会皮肤科医师分会  疑难重症及罕见病国家重点实验室  国家皮肤与免疫疾病临床医学研究中心     

  1. 中国医师协会皮肤科医师分会  疑难重症及罕见病国家重点实验室  国家皮肤与免疫疾病临床医学研究中心  
  • 收稿日期:2023-03-06 修回日期:2023-05-22 发布日期:2023-08-30
  • 通讯作者: 晋红中;王刚 E-mail:jinhongzhong@263.net;wanggangxjyy@163.com
  • 基金资助:
    中央高水平医院临床科研业务费(2022-PUMCH-B-092);中国医学科学院医学与健康科技创新工程项目(2021-I2M-1-059);国家自然科学基金(82073450)

Consensus on health education of patients with pemphigus (2023)

China Dermatologist Association, State Key Laboratory of Complex Severe and Rare Diseases, National Clinical Research Center for Dermatologic and Immunologic Diseases   

  1. China Dermatologist Association, State Key Laboratory of Complex Severe and Rare Diseases, National Clinical Research Center for Dermatologic and Immunologic Diseases
  • Received:2023-03-06 Revised:2023-05-22 Published:2023-08-30
  • Contact: Jin Hongzhong; Wang Gang E-mail:jinhongzhong@263.net;wanggangxjyy@163.com
  • Supported by:
    National High Level Hospital Clinical Research Funding (2022-PUMCH-B-092); CAMS Innovation Fund for Medical Sciences (CIFMS)(2021-I2M-1-059); National Natural Science Foundation of China (82073450)

摘要: 【摘要】 天疱疮是一组少见而严重的自身免疫性大疱性疾病,不少患者对该病的性质、治疗、预后和注意事项等方面存在疑问和误解。中国医师协会皮肤科医师分会组织相关领域专家,基于国内外天疱疮诊疗现状,整理并筛选出天疱疮患者关心的15条常见问题,涉及天疱疮的定义、病因、相关检查、治疗方法、用药指导、生活注意事项等方面,经专家撰写及集体讨论后制订本健康教育共识,旨在提高皮肤科和其他相关科室医师对该病的认识,增进天疱疮患者及家属对该类疾病的了解,促进医师和患者之间的交流。

关键词: 天疱疮, 病人教育(主题), 治疗, 共识

Abstract: 【Abstract】 Pemphigus is a group of rare and serious autoimmune bullous diseases. Many patients have doubts and misunderstandings about the nature, treatment and prognosis of the disease, and considerations during the treatment. China Dermatologist Association organized experts in this field to sort out and screen out 15 common questions that pemphigus patients care about based on the current status of pemphigus diagnosis and treatment in China and other countries, and these questions involved the definition and etiology of, related examinations and treatment modalities for, and medication guidance on pemphigus, as well as considerations during daily life. The consensus on health education of patients with pemphigus was written and collectively discussed by experts, aiming to improve the understanding of the disease by dermatologists and clinicians from other relevant departments, provide basic knowledge of the disease for patients and their relatives, and to promote communication between clinicians and patients with pemphigus.

Key words: Pemphigus, Patient education as topic, Therapy, Consensus

引用本文

中国医师协会皮肤科医师分会 疑难重症及罕见病国家重点实验室 国家皮肤与免疫疾病临床医学研究中心 . [开放获取]   天疱疮患者健康教育共识(2023版)[J]. 中华皮肤科杂志, 2023,e20230123. doi:10.35541/cjd.20230123

China Dermatologist Association, State Key Laboratory of Complex Severe and Rare Diseases, National Clinical Research Center for Dermatologic and Immunologic Diseases. Consensus on health education of patients with pemphigus (2023)[J]. Chinese Journal of Dermatology,2023,e20230123. doi:10.35541/cjd.20230123